Get Involved: working with patients, carers and the public
Together with our local health networks, we jointly fund People in Health West of England, a partnership to promote innovative and effective public involvement in research and evidence-based service improvement.
Each year, as directed by the NIHR Coordinating Centre, we create and distribute a Patient Research Experience Survey (PRES) with the help of our partner organisations. This takes the form of a PRES working group that meets regularly.
The PRES helps us to better understand the experience of people who take part in research studies in the West of England and make any changes suggested by the responses.
We have four versions of the PRES for 2018/2019 - for ages 4-7, for ages 8-13, for ages 14-17 and the main PRES. We had these printed professionally - the main PRES incorporates an easy to return pre-paid envelope. All partner organisations have now received their surveys but please contact us if you have not.
If you are from a primary care site (for example GP, dentist, pharmacist) visit our dedicated website.
People in Health West of England provides a range of supportive resources, such as templates for developing PPI strategies and expenses policies. It also issues a regular newsletters promoting involvement opportunities to both the public and health professionals.
You can hear study participant Pat Eagle discuss the benefits of being involved in research here: (MP3 - recorded for BBC Radio Gloucester in October 2016).
You can find out more about People in Health West of England here: www.phwe.org.uk
There are further sites that offer national involvement opportunities for patients, carers and the public:
INVOLVE is a national advisory group to support active public involvement in NHS, public health and social care research. You can find out more about them here: www.invo.org.uk
People in Research is a national service that researchers use to find members of the public to get involved in their research and for members of the public to search for research projects they would like to be involved in. More details can be found here: www.peopleinresearch.org.uk
The UK Clinical Trials Gateway (UKCTG) helps people make informed choices about taking part in clinical trials. The service helps give people the confidence to join clinical trials, by providing useful information about how trials work – while helping link them to researchers running trials they might be interested in. Wherever you live in the UK, the UKCTG can let you know about research that’s relevant to you. www.ukctg.nihr.ac.uk/home/